Seal Children with Neurodevelopmental Disabilities

Children with Neurodevelopmental Disabilities (ebook)

Product Type: PDF (Complete Book)

ISBN: 9781908316639

Arnab Seal (Editor), Gillian Robinson (Editor), Anne M. Kelly (Editor), Jane Williams (Editor)

Series: Mac Keith Press

Edition: 1st

Publication date: January 2013

Page count: 760

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Practical Guide

A comprehensive textbook on the practice of paediatric neurodisability, written by practitioners and experts.

Using a problem-oriented approach, the authors give best-practice guidance, and centre on the needs of the child and family, working in partnership with multi-disciplinary, multi-agency teams. Drawing on evidence-based practice to provide a ready reference for managing common problems encountered in practice. Chapters open with real life clinical case scenarios and lead onto a problem-based approach.

The book covers the practicalities of assessment, management and care of children with a wide range of disabling conditions and also provides tools and templates for practising paediatricians.

The text is illustrated with clear tables, figures, diagrams and flow charts to enable easy referencing. Each section has guidance on further reading, useful websites and other information useful for families.

Readership

Paediatricians (trainees in community and neurodisability paediatrics); consultants in community and general paediatrics; allied health professionals –  physiotherapists, occupational therapists, speech and language therapists; educational psychologists and clinical psychologists working with children; other professionals working with disabled children, young people and their families.

Arnab Seal (Editor)

Dr Arnab Seal (MD, DCH, DNB (India), FRCPH) is a Consultant Paediatrician currently working in Leeds, UK, practising general and community paediatrics.

Gillian Robinson (Editor)

Gillian Robinson (MB, ChB, MRCPCH, MMedSc) is a Consultant Community Paedatrician working in Leeds, both in neurodisability and child protection.

Anne M. Kelly (Editor)

Dr Anne M Kelly (MB BS, MRCPCH, DCH, MMed Sci) is a Consultant Paediatrician working in Leeds, and has worked both in acute and community paediatrics and is currently focusing on neurodisability and child protection.

Jane Williams (Editor)

Dr Jane Williams is a Consultant Paediatrician working in community, child development centre and hospital settings. Chair of the British Academy of Childhood Disability 2007-2010, and member of NICE Guideline Development Group on managing spasticity (2012)..

  • Authors' Appointments xi
  • Foreword xiii
  • Preface xv
  • Section 1 Health and disability 1
  • 1 Health, disability and functioning 3
  • Arnab Seal
  • 2 Quality of life 9
  • David Cundall
  • 3 Prevention of disability and health promotion 13
  • Arnab Seal
  • Section 2 development 19
  • 4 Child development 21
  • Anne M Kelly
  • Section 3 Assessment 59
  • 5 Assessment and formulation 61
  • Anne M Kelly, Arnab Seal and Gillian Robinson
  • Section 4 Impairment of motor function 81
  • 6 The infant with hypotonia 83
  • Gillian Robinson
  • 7 The child with delayed walking or abnormal gait 91
  • Gillian Robinson
  • 8 The 'stiff' child or the child with increased muscle tone 95
  • Gillian Robinson
  • 9 The child with ongoing involuntary movements 103
  • Gillian Robinson
  • 10 The child with paroxysmal movement disorder 113
  • Gillian Robinson
  • 11 Scoliosis 123
  • Gillian Robinson
  • 12 The 'clumsy' child 127
  • Gillian Robinson
  • Section 5 Communication 133
  • 13 Communication disorders 135
  • Anne M Kelly and Joanne Sandiford
  • Section 6 L earning difficulties and loss of skills 161
  • 14 Disordered development and learning disability 163
  • Karen Horridge
  • 15 Educational underattainment or the child failing at school 179
  • Gillian Robinson
  • 16 Loss of previously acquired skills 197
  • Arnab Seal
  • Section 7 Behaviour disorders 207
  • 17 Behaviour and understanding and coping with disability 209
  • Martina Waring and Arnab Seal
  • 18 Behaviour in children with disabilities 215
  • Martina Waring and Arnab Seal
  • 19 Common behavioural disorders 223
  • Arnab Seal
  • Section 8 Sensory impairment 235
  • 20 Hearing impairment and deafness 237
  • Arnab Seal, Gillian Robinson and Anne M Kelly
  • 21 Visual impairment 263
  • Alison Salt
  • Section 9 High-risk groups 287
  • 22 Extremely preterm infants and neonatal encephalopathy 289
  • Arnab Seal
  • 23 Congenital infections and toxins 299
  • Anne M Kelly
  • 24 Abuse resulting in disability 313
  • David Cundall and Gillian Robinson
  • Section 10 Specific conditions and disorders 317
  • 25 Cerebral palsy 319
  • Jane Williams and Anne M Kelly
  • 26 Epilepsy 347
  • Jane Williams
  • 27 Autism spectrum disorders 367
  • Jeremy Parr
  • 28 Attention difficulties 385
  • Val Harpin
  • 29 Neuromuscular disorders 397
  • Anne-Marie Childs
  • 30 Acquired brain injury 409
  • Gillian Robinson
  • 31 Spinal cord disorders and hydrocephalus in children 419
  • Arnab Seal
  • 32 Musculoskeletal conditions 431
  • Arnab Seal and Anne M Kelly
  • Section 11 Genetics 441
  • 33 Genetic conditions 443
  • Mohnish Suri and Shiela Puri (Down syndrome section)
  • Section 12 Partnerships with families 497
  • 34 Talking to families and carers 499
  • Arnab Seal
  • 35 The impact of childhood disability on the family 503
  • Lorna Highet, Anne M Kelly and Anne Hall
  • 36 Supporting families during the process of adjustment 507
  • Gillian Robinson
  • 37 Early support 511
  • Gillian Robinson
  • 38 Cultural perspectives 517
  • Arnab Seal
  • 39 Ethical perspectives 525
  • Gillian Robinson and Anne M Kelly
  • 40 Access to leisure activities 529
  • Donna Hilton and Jane Williams
  • 41 Bullying 535
  • Gillian Robinson
  • Section 13 Frameworks for family support 537
  • 42 Health services 539
  • Gillian Robinson
  • 43 Children in hospital 547
  • Jane Williams
  • 44 Supporting the needs of children and their families 551
  • Lorna Highet
  • 45 Voluntary sector 559
  • Christine Lenehan and Amanda Allard
  • 46 Legal frameworks for support 569
  • Christine Lenehan and Amanda Allard
  • 47 Education 573
  • Gail Treml
  • 48 Transition planning: a health perspective 581
  • Shiela Puri
  • 49 Advocacy 587
  • Arnab Seal
  • Section 14 Caring for a child with a disability 591
  • 50 Feeding problems and growth failure 593
  • Anne M Kelly and Helen Harrison
  • 51 Drooling 607
  • Anne M Kelly
  • 52 Tracheostomy and airway support 611
  • Anne M Kelly
  • 53 Pain in children with complex needs 615
  • Arnab Seal
  • 54 Sleep disorders 623
  • Arnab Seal
  • 55 Continence 635
  • Gillian Robinson
  • 56 Bathing 647
  • Gillian Robinson
  • 57 Oral hygiene 649
  • Gillian Robinson
  • 58 Dressing 651
  • Gillian Robinson
  • 59 Optimizing participation: the role of assistive technology 653
  • Benita Powrie
  • 60 Puberty 659
  • Anne M Kelly
  • 61 Child abuse 667
  • David Cundall and Gillian Robinson
  • 62 Life-shortening conditions and planning for the end of life 673
  • Toni Wolff and Anne M Kelly
  • Section 15 Appendices 681
  • Index 717

'In general, this is a very good textbook and would be a useful addition to the bookshelf of a CDC. Whilst some of the chapters are very specific to paediatricians rather than allied health professionals it provides detailed information and insight into the more general picture. It is a textbook, which has been written to provide up-to-date best practice for children and young people with a neurodisability. It aims to bring together knowledge and advice on the practical aspects of managing children and the background to support it, which in my opinion it does.' Cate Naylor, Association of Paediatric Chartered Physiotherapists Journal, 2013

'This book from the Mac Keith Press is multi-authored by neurodisability paediatricians who are active clinicians. Thus it is full of practical advice and information relevant to general and community paediatricians as well as allied health professionals; all are the intended audience for the book. It is comprehensive and clearly presented with vignettes to illustrate points, and I particularly liked the layout on each page with a mix of text, charts, diagrams, boxes, and learning points.' Gillian Baird, Developmental Medicine and Child Neurology, 2013

'This book provides a comprehensive overview of all aspects of neurodevelopmental disabilities in childhood. It is a practical guide to the many etiologies, clinical presentations, associated disabilities, and treatments of children and adolescents with neurodisabilities. The book is aimed at pediatricians in training and other health care professionals. An extremely good aspect of the book is that the authors always approach topics from a holistic point of view.' Beatrice Latal, Neuropediatrics, 2013