Ronen chapter cover-14

Life Quality Outcomes – Chapter 14: Measurement concepts, standards and perspectives of patient-reported outcomes (ebook)

This chapter is part of Life Quality Outcomes

Product Type: PDF (Sub-Section of Book)

ISBN: 9781908316592

Aileen Davis (Chapter Author)

Series: Clinics in Developmental Medicine

Edition: 1st

Publication date: March 2013

Page count: 12

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£4.20 (inc 20% VAT)

Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization’s concepts of ‘health’, ‘functioning’ and ‘quality of life’ for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications.

Readership:

  • Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons.
  • Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible.
  • Students in the health professions and others in related fields (such as social work).

Gabriel M. Ronen (Editor)

Gabriel M. Ronen is a Professor of Pediatrics at McMaster University and a Pediatric Neurologist at McMaster Children's Hospital. He is certified in Neurology by the Royal College of Physicians and Surgeons of Canada.

Peter L. Rosenbaum (Editor)

Peter Rosenbaum is a Professor of Paediatrics at McMaster University, Ontario, Canada, where he holds a Canada Research Chair in Childhood Disability, Mentoring and Dissemination. He is co-founder of the CanChild Centre for Childhood Disability Research.

Aileen Davis (Chapter Author)

University of Toronto

Canada

  • Chapter 14: Measurement concepts, standards and perspectives of patient-reported outcomes.
  • Aileen Davis,
  • University of Toronto
  • Canada

(Full Book review) 'As justification for buying the book, I cannot better John McLaughlin who wrote the Foreword: ëFailure to recognize the distinction between causes of disability and the consequences has impeded both research and public understanding. The authors do a great service by illuminating the confusing literature that has evolved regarding the related but distinct concepts of health status, health-related quality of life, and a personal view of quality of life.' - Allan Colver, DMCN, 2013