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Measures for Children with Developmental Disabilities

An ICF-CY Approach

Product Type: Print Edition (Complete Book)

ISBN: 9781908316455

Annette Majnemer (Editor)

Series: Clinics in Developmental Medicine

Edition: 1st

Publication date: July 2012

Page count: 552

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£150.00 £75.00

You can download chapters or sections from this book

Presents and reviews outcome measures across a wide range of attributes that are applicable to children and youth with developmental disabilities.

The book uses the International Classification of Functioning, Disability and Health (ICF-CY) as a framework for organizing the various measures into sections and chapters.

Each chapter co-incides with domains within Body Functions, Activities and Participation, and Personal and Environmental Factors. Advances in measurement using neuroimaging technologies and genetic testing are also included, as are chapters addressing broad measures of health and quality of life. Each chapter provides a representative sample of useful measures, with more detailed descriptions of those with the best properties and potential utility. Most chapters follow a prescribed format: what is the construct, general factors to consider when measuring this domain; and overview of recommended measures.

This book is invaluable for clinicians and educators seeking an appropriate, psychometrically sound measure in a particular domain of functioning that can be used with an individual child or target population. The book is also a useful resource for researchers in the field of childhood disability.
Readership

Occupational therapists, physical therapists, speech-language pathologists, psychologists, physicians, nurses, and others who provide services to infants, children and youth with developmental disabilities; researchers investigating research questions pertaining to the field of childhood disability, university-based students in health-profession programs with courses related to the assessment of children and youth with developmental disabilities.

Clinics in Developmental Medicine No. 194-5

Annette Majnemer (Editor)

Annette Majnemer

Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is currently Professor and Interim Director, School of Physical & Occupational Therapy, McGill University; Associate Editor of Developmental Medicine & Child Neurology and Co-editor of Physical and Occupational Therapy in Pediatrics.

Her educational and scientific contributions were recently acknowledged by the Muriel Driver Award from the Canadian Association of Occupational Therapists. She is a nominated fellow of the Canadian Academy of Health Sciences.

  • Section I: Overview
  • Chapter 1: Selection and use of outcome measures - Annette Majnemer
  • Chapter 2: Organizational structure of this text - Annette Majnemer
  • Section II: Body Structures and Functions
  • - Body Structures
  • Chapter 3: Neuroimaging testing (s110) - Catherine Limperopoulos
  • Chapter 4: Genetic testing (not classified) - Myriam Srour, Michael Shevell
  • - Body Functions
  • Chapter 5: Global mental functions- Consciousness and sleep (b110, b134) - Reut Gruber, Emily B.J. Coffey, Melanie Stelmazuk
  • Chapter 6: Global mental functions- Intellectual (b117) - Kim M. Cornish, Michael J. Sornberger, Marina Dupasquier, John Wilding
  • Chapter 7: Global mental functions- Psychosocial (b122) - Sara King, Christine Chambers
  • Chapter 8 : Global mental functions- Temperament and personality (b126) - Suzanne Woods Groves, Dennis Harper
  • Chapter 9: Specific mental functions- Attention, memory, higher-level cognitive (b140, b144, b164) - John Wilding, Kim Cornish
  • Chapter 10: Specific mental functions- Emotional functions, experience of self/time (b152, b180) - Andrea M. Lee
  • Chapter 11: Specific mental functions- Perceptual (b156) - Suzanne Woods-Groves, Dennis Harper
  • Chapter 12: Specific mental functions- Language (b167) - Jane McCormack, Diane Jacobs, Karla Washington
  • Chapter 13: Sensory functions- General (b210-b270) - Erna Imperatore Blanche, Zoe Mailloux, Gustavo Reinoso
  • Chapter 14: Sensory functions- Pain (b280-b289) - Tim Oberlander, Chantel C. Burkitt, Frank J. Symons, Celeste Johnston
  • Chapter 15: Speech functions (b310-b340) - Elspeth McCartney
  • Chapter 16: Neuromusculoskeletal and movement-related functions - Virginia Wright, Desiree Maltais, Heidi Sanders, Patricia Burtner
  • Section III: Global Developmental Functioning
  • Body Functions, Activity and Participation (not classified)
  • Chapter 17: Screening tools - Frances Glascoe
  • Chapter 18: Global developmental assessments - Barbara Mazer, Annette Majnemer, Noemi Dahan-Oliel, Irene Sebestyen
  • Section IV: Activity and Participation
  • Chapter 19: Overview of activity and participation - Christopher Morris, Annette Majnemer
  • Chapter 20: Learning and applying knowledge (d110-d179) - Kirsten Ellingsen
  • Chapter 21: General tasks and demands (d210-d250) - Susana Castro, Shannon Lewis, Rune J. Simeonsson
  • Chapter 22: Communication (d310-d369) - Sharynne McLeod, Elspeth McCartney, Jane McCormack
  • Chapter 23: Mobility (d410-d489) - Heidi Sanders Virginia Wright, Desiree Maltais
  • Chapter 24: Self-care (d510-d571) - Laurie Snider, Annette Majnemer
  • Chapter 25: Domestic life (d610-d669) - Monica Maia, Kylee Miller, Rune J. Simeonsson
  • Chapter 26: Interpersonal interactions and relationships (d710-d779) - Sacha Bailey, Lucyna Lach, Katie Byford Richardson, Michael Saini
  • Chapter 27: Major life areas (d810-d879) - Margareta Adolfsson, Rune J. Simeonsson, Andrea Lee, Kirsten Ellingsen
  • Chapter 28: Community, social and civic life (d910-d950) - Gary Bedell, Mary Alunkal Khetani, Wendy Coster, Mary Law, Martha Cousins
  • Section V: Contextual Factors
  • - Personal (not classified)
  • Chapter 29: Personal factors - Rune Simeonsson
  • -Environmental (e110-e595)
  • Chapter 30: Physical, social and attitudinal environment - Mary Alunkal Khetani, Gary Bedell, Wendy Coster, Martha Cousins, Mary Law
  • Chapter 31: Health services and systems - Debbie Feldman, Bonnie Swaine
  • Chapter 32: Family functioning - Aline Bogossian, Lucyna M. Lach, Michael Saini, Ted McNeill
  • Section VI: Holistic view of health and well-being (not classified)
  • Chapter 33: Health status - Nora Fayed, Anne Klassen, Vero Schiariti
  • Chapter 34: Quality of life - Allan Colver

‘The breadth, comprehensiveness, and logical organization are profound and will help pediatric physical therapists better integrate ICF-CY measurement into their practice. The text is essential to international pediatric physical therapy practice and belongs and will become an invaluable addition to one’s resources as a pediatric therapist using ICF-based measurement. Note that this text also is impressive in the comprehensiveness of its coverage of outcome measures as well as the ICF. The authors are international experts in health and measurement and young emerging scientists within the field of child health. Thus, the utility and relevance and the potential effect this text will have across political, social, and geographic boundaries is great. This text will serve as an excellent resource for all pediatric therapists, and it will serve as a welcome addition to individuals both experienced and new to the ICF-CY.’ Carole A. Tucker, Pediatric Physical Therapy, 2014

‘I highly recommend this book: Professor Majnemer has brought together a wide range of outcome measurement experts creating a thoughtfully crafted book, essential reading for anyone selecting outcome measures for use with children and youth with developmental disabilities. The book is framed by the components of the ICF-CY and is extremely helpful and illuminating in describing the core concepts of the ICF-CY. If you are only going to buy one book on outcome measures make it this one, and if your budget will not stretch that far encourage your library to buy it.’ Carolyn Dunford, British Journal of Occupational Therapy, 2013

'Will such a major book, 540 pages double columned in A4-format, have any clinical importance? Yes, I think it might become the reference work, a ëmeasure Bibleí, for any habilitation team as every therapist should be able to find what is relevant for her or his part of the service given.' Bengt Lagerkvist, Acta Paediatrica, 2013

'This impressive book does not only provide a systematic overview of measures for children with developmental disabilities, it also does so within the framework of the International Classification of Functioning, Disability and Health, Children and Youth Version (ICF-CY). The latter is very helpful, as the organization within the framework of the ICF-CY will assist clinicians, researchers, and managers in health care to understand what is measured with a specific tool, and to determine which tool is most appropriate in a specific situation. In other words, the book disentangles which instrument measures which aspect of well-being of the child with a developmental disability.' Mijna Hadders-Algra, Development Medicine & Child Neurology, 2013

‘The breadth, comprehensiveness, and logical organization are profound and will help pediatric physical therapists better integrate ICF-CY measurement into their practice. The text is essential to international pediatric physical therapy practice and belongs and will become an invaluable addition to one’s resources as a pediatric therapist using ICF-based measurement. Note that this text also is impressive in the comprehensiveness of its coverage of outcome measures as well as the ICF. The authors are international experts in health and measurement and young emerging scientists within the field of child health. Thus, the utility and relevance and the potential effect this text will have across political, social, and geographic boundaries is great. This text will serve as an excellent resource for all pediatric therapists, and it will serve as a welcome addition to individuals both experienced and new to the ICF-CY.’ Carole A. Tucker, Pediatric Physical Therapy, 2014