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Cerebral Palsy
From Diagnosis to Adult Life
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£35.00
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A highly readable and accessible overview of Cerebral Palsy. The book has been designed to provide readers with an understanding of Cerebral Palsy as a developmental as well as a neurological condition.
It details the nature of Cerebral Palsy, its causes and its clinical manifestations. Using clear, accessible language (supported by an extensive glossary) the authors have blended current science with metaphor both to explain the biomedical underpinnings of Cerebral Palsy and to share their awareness that there is much that can be done to promote child and family development, enhance the capabilities of young people with Cerebral Palsy, empower their families, and chart a course into adulthood.
The authors have reviewed classification and have emphasised the wide range of functional impairments that are seen in both children and adults with Cerebral Palsy. In doing so they have used the ICF framework and have described the range of interventions that may be applicable to people with cerebral palsy whilst emphasising that the condition is lifelong and that promotion of adaptation is a key component to understanding its nature and effects.
Readership
Essential reading for parents and carers of those with cerebral palsy, clinicians, paediatricians, neurologists, occupational therapists and physiotherapists.
A Practical Guide from Mac Keith Press
Peter Rosenbaum
Peter Rosenbaum is a Professor of Paediatrics at McMaster University, Ontario, Canada, where he holds a Canada Research Chair in Childhood Disability, Mentoring and Dissemination. He is co-founder of the CanChild Centre for Childhood Disability Research.
He is also co-editor of the books Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions, Ethics in Child Health, Gross Motor Function Measure (GMFM-66 & GMFM-88) and ICF: A Hands-on Approach for Clinicians and Families.
Other books by Peter Rosenbaum
- ICF: A Hands-on Approach for Clinicians and Families - Olaf Kraus de Camargo, Liane Simon, Gabriel Ronen, Peter Rosenbaum (Editors)
- Ethics in Child Health - Peter Rosenbaum, Gabriel Ronen, Eric Racine, Jennifer Johannesen and Bernard Dan (Editors)
- Life Quality Outcomes - Gabriel Ronen, Peter Rosenbaum (Editors)
Lewis Rosenbloom
Lewis Rosenbloom has been a Consultant Paediatric Neurologist since 1971. He holds an honorary appointment to the Royal Liverpool Children’s NHS Foundation Trust UK. His special clinical, teaching and research interests are in paediatric neurodisability.
He has published widely on many aspects of cerebral palsy including feeding issues and life expectation in disabled people. He is co-editor of the book Developmental Disability and Ageing, Feeding the Disabled Child and Cerebral Palsy: Science and Clinical Practice.
Other books by Lewis Rosenbloom
- Cerebral Palsy - Bernard Dan, Margaret Mayston, Nigel Paneth, Lewis Rosenbloom (Editors)
- Developmental Disability and Ageing - Gregory O'Brien, Lewis Rosenbloom (Editors)
- Feeding the Disabled Child - Peter B Sullivan, Lewis Rosenbloom (Editors)
Authors vii
Acknowledgements viii
Foreword by John Mantovani ix
Preface xi
PART 1 Cerebral palsy – background perspectives
1 What is cerebral palsy? 3
2 Epidemiology: patterns and causes of cerebral palsy 14
with Niina Kolehmainen
3 Aetiological considerations 28
4 How is cerebral palsy categorized, why is this done and what are the potential pitfalls? 39
5 What does the designation ‘cerebral palsy’ tell us, and how does this
relate to other developmental and neurological disabilities? 51
PART 2 Contextual factors and critical thinking
6 Evaluating evidence 59
7 The International Classification of Functioning, Disability and Health 70
8 Cerebral palsy and the family 76
PART 3 Clinical perspectives in cerebral palsy
9 Clinical recognition, diagnosis and assessment of children with cerebral
palsy 89
10 Principles of interventions 102
11 Interventions: orthodox and heterodox. A perspective on issues in ‘treatment’
with Margaret Mayston 115
12 Therapists and therapies in cerebral palsy,
with Margaret Mayston 124
PART 4 Outcomes in childhood and beyond
13 Outcomes 151
14 Transition to adulthood 161
15 Adult functioning 169
Glossary 181
Appendices 189
Index 201
'This is a unique book, one that truly comes from a deep sensitivity to the problems of this disability. It is dedicated to the parents of children with cerebral palsy, who the authors note have found themselves in an "unexpected career" of raising a child with cerebral palsy. Although one might find many pediatric neurology books that describe cerebral palsy extensively, none can approach the overall understanding of this disability that this book achieves.'
Jay Goldsmith, MD, Tulane University School of Medicine
'This text affords readers a rich source of health information on cerebral palsy that is tied to the literature, currently available research evidence, and the authors' extensive clinical experience in paediatrics. The user-friendly text is pitched at an audience that includes general medical practitioners, therapists, and parents of children with cerebral palsy.'
David Hamilton, Journal of Intellectual & Developmental Disability, 2013
'Cerebral Palsy: From Diagnosis to Adult LIfe provides practical advice on all aspects of cerebral palsy. The wisdom, compassion, and personal perspectives of the authors are evident in every chapter. The book should be compulsory reading for paediatricians, including trainees, and all those other health professionals that contribute to the management of individuals with cerebral palsy. But perhaps most importantly, it is also written in accessible language that will enable it to be useful for families and people with cerebral palsy themselves. Professor Rosenbaum and Dr Rosenbloom have achieved the difficult task of speaking equally to all readers, putting into practice the principles that they espouse in the text.'
Dinah S Reddihough, Development Medicine and Child Neurology, 2012
'If you are looking for a general guide on the broad topic of cerebral palsy, in particular how to address parents, how to perhaps improve service, how to communicate diagnostic information, and what practical and research questions need to be studied, this book will offer an impressive panorama, with an empathetic attitude that the child and the parents should be the focus of all efforts.'
Eugen Boltshauser, Neuropediatrics, 2012
