Subject: Neurodevelopmental Disorders and Neurodisability

Series: Mac Keith Press Practical Guides

Publication date: 01/03/2013

ISBN: 9781908316622

Edition: 1st

Pages: 760

Children with Neurodevelopmental Disabilities

The Essential Guide to Assessment and Management

Arnab Seal, Gillian Robinson, Anne Kelly, Jane Williams (Editors)

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A comprehensive textbook on the practice of paediatric neurodisability, written by practitioners and experts.

Using a problem-oriented approach, the authors give best-practice guidance, and centre on the needs of the child and family, working in partnership with multi-disciplinary, multi-agency teams. Drawing on evidence-based practice to provide a ready reference for managing common problems encountered in practice. Chapters open with real life clinical case scenarios and lead onto a problem-based approach.

The book covers the practicalities of assessment, management and care of children with a wide range of disabling conditions and also provides tools and templates for practising paediatricians.

The text is illustrated with clear tables, figures, diagrams and flow charts to enable easy referencing. Each section has guidance on further reading, useful websites and other information useful for families.


Paediatricians (trainees in community and neurodisability paediatrics); consultants in community and general paediatrics; allied health professionals –  physiotherapists, occupational therapists, speech and language therapists; educational psychologists and clinical psychologists working with children; other professionals working with disabled children, young people and their families.

Arnab Seal

Dr Arnab Seal (MD, DCH, DNB (India), FRCPH) is a Consultant Paediatrician currently working in Leeds, UK, practising general and community paediatrics

Gillian Robinson

Dr Gillian Robinson (MB, ChB, MRCPCH, MMedSc) is a Consultant Community Paedatrician working in Leeds, both in neurodisability and child protection.

Anne M Kelly

Dr Anne M Kelly (MB BS, MRCPCH, DCH, MMed Sci) is a Consultant Paediatrician working in Leeds, and has worked both in acute and community paediatrics and is currently focusing on neurodisability and child protection.

Jane Williams

Dr Jane Williams is a Consultant Paediatrician working in community, child development centre and hospital settings. Chair of the British Academy of Childhood Disability 2007-2010, and member of NICE Guideline Development Group on managing spasticity (2012).

Authors’ Appointments xi
Foreword xiii
Preface xv
Section 1 Health and disability 1
1 Health, disability and functioning 3
Arnab Seal
2 Quality of life 9
David Cundall
3 Prevention of disability and health promotion 13
Arnab Seal
Section 2 development 19
4 Child development 21
Anne M Kelly
Section 3 Assessment 59
5 Assessment and formulation 61
Anne M Kelly, Arnab Seal and Gillian Robinson
Section 4 Impairment of motor function 81
6 The infant with hypotonia 83
Gillian Robinson
7 The child with delayed walking or abnormal gait 91
Gillian Robinson
8 The ‘stiff’ child or the child with increased muscle tone 95
Gillian Robinson
9 The child with ongoing involuntary movements 103
Gillian Robinson
10 The child with paroxysmal movement disorder 113
Gillian Robinson
11 Scoliosis 123
Gillian Robinson
12 The ‘clumsy’ child 127
Gillian Robinson
Section 5 Communication 133
13 Communication disorders 135
Anne M Kelly and Joanne Sandiford
Section 6 L earning difficulties and loss of skills 161
14 Disordered development and learning disability 163
Karen Horridge
15 Educational underattainment or the child failing at school 179
Gillian Robinson
16 Loss of previously acquired skills 197
Arnab Seal
Section 7 Behaviour disorders 207
17 Behaviour and understanding and coping with disability 209
Martina Waring and Arnab Seal
18 Behaviour in children with disabilities 215
Martina Waring and Arnab Seal
19 Common behavioural disorders 223
Arnab Seal
Section 8 Sensory impairment 235
20 Hearing impairment and deafness 237
Arnab Seal, Gillian Robinson and Anne M Kelly
21 Visual impairment 263
Alison Salt
Section 9 High-risk groups 287
22 Extremely preterm infants and neonatal encephalopathy 289
Arnab Seal
23 Congenital infections and toxins 299
Anne M Kelly
24 Abuse resulting in disability 313
David Cundall and Gillian Robinson
Section 10 Specific conditions and disorders 317
25 Cerebral palsy 319
Jane Williams and Anne M Kelly
26 Epilepsy 347
Jane Williams
27 Autism spectrum disorders 367
Jeremy Parr
28 Attention difficulties 385
Val Harpin
29 Neuromuscular disorders 397
Anne-Marie Childs
30 Acquired brain injury 409
Gillian Robinson
31 Spinal cord disorders and hydrocephalus in children 419
Arnab Seal
32 Musculoskeletal conditions 431
Arnab Seal and Anne M Kelly
Section 11 Genetics 441
33 Genetic conditions 443
Mohnish Suri and Shiela Puri (Down syndrome section)
Section 12 Partnerships with families 497
34 Talking to families and carers 499
Arnab Seal
35 The impact of childhood disability on the family 503
Lorna Highet, Anne M Kelly and Anne Hall
36 Supporting families during the process of adjustment 507
Gillian Robinson
37 Early support 511
Gillian Robinson
38 Cultural perspectives 517
Arnab Seal
39 Ethical perspectives 525
Gillian Robinson and Anne M Kelly
40 Access to leisure activities 529
Donna Hilton and Jane Williams
41 Bullying 535
Gillian Robinson
Section 13 Frameworks for family support 537
42 Health services 539
Gillian Robinson
43 Children in hospital 547
Jane Williams
44 Supporting the needs of children and their families 551
Lorna Highet
45 Voluntary sector 559
Christine Lenehan and Amanda Allard
46 Legal frameworks for support 569
Christine Lenehan and Amanda Allard
47 Education 573
Gail Treml
48 Transition planning: a health perspective 581
Shiela Puri
49 Advocacy 587
Arnab Seal
Section 14 Caring for a child with a disability 591
50 Feeding problems and growth failure 593
Anne M Kelly and Helen Harrison
51 Drooling 607
Anne M Kelly
52 Tracheostomy and airway support 611
Anne M Kelly
53 Pain in children with complex needs 615
Arnab Seal
54 Sleep disorders 623
Arnab Seal
55 Continence 635
Gillian Robinson
56 Bathing 647
Gillian Robinson
57 Oral hygiene 649
Gillian Robinson
58 Dressing 651
Gillian Robinson
59 Optimizing participation: the role of assistive technology 653
Benita Powrie
60 Puberty 659
Anne M Kelly
61 Child abuse 667
David Cundall and Gillian Robinson
62 Life-shortening conditions and planning for the end of life 673
Toni Wolff and Anne M Kelly
Section 15 Appendices 681
Index 717

'This book provides a comprehensive overview of all aspects of neurodevelopmental disabilities in childhood. It is a practical guide to the many etiologies, clinical presentations, associated disabilities, and treatments of children and adolescents with neurodisabilities. The book is aimed at pediatricians in training and other health care professionals. An extremely good aspect of the book is that the authors always approach topics from a holistic point of view.'

Beatrice Latal, Neuropediatrics, 2013

'This book from the Mac Keith Press is multi-authored by neurodisability paediatricians who are active clinicians. Thus it is full of practical advice and information relevant to general and community paediatricians as well as allied health professionals; all are the intended audience for the book. It is comprehensive and clearly presented with vignettes to illustrate points, and I particularly liked the layout on each page with a mix of text, charts, diagrams, boxes, and learning points.'

Gillian Baird, Developmental Medicine and Child Neurology, 2013

'In general, this is a very good textbook and would be a useful addition to the bookshelf of a CDC. Whilst some of the chapters are very specific to paediatricians rather than allied health professionals it provides detailed information and insight into the more general picture. It is a textbook, which has been written to provide up-to-date best practice for children and young people with a neurodisability. It aims to bring together knowledge and advice on the practical aspects of managing children and the background to support it, which in my opinion it does.'

Cate Naylor, Association of Paediatric Chartered Physiotherapists Journal, 2013

Children with Neurodevelopmental Disabilities – Chapter 1: Health, disability and functioning (free ebook) - £0