Subject: Neurodevelopmental Disorders and Neurodisability

Series: Clinics in Developmental Medicine

Publication date: 07/09/2012

ISBN: 9781908316455

Edition: 1st

Pages: 552

Measures for Children with Developmental Disabilities

An ICF-CY Approach

Annette Majnemer (Editor)

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Measurement of outcomes and their determinants is essential in informing decisions about treatment, and targeting those who may benefit most.

This book uses the International Classification of Functioning, Disability and Health (ICF-CY) to identify the best measures to use to assess a child’s developmental disabilities. It presents and reviews outcome measures across a wide range of attributes that are applicable to children and youth with developmental disabilities.

  • The ‘go to’ reference on assessment tools and outcome measures for children with neurodevelopmental disabilities
  • Quickly identifies the best measures or outcomes for therapy needs assessment or service provision
  • Uses the ICF-CY framework therefore facilitates the retrieval of one or more measures that are directly related to the components of this widely used classification scheme
  • Each chapter includes tables that provide a capsule summary of the primary attributes of a subset of key measures for ease of reference

This book is invaluable for clinicians and educators seeking an appropriate, psychometrically sound measure in a particular domain of functioning that can be used with an individual child or target population. It’s also a useful resource for researchers in the field of childhood disability.


Occupational therapists, physical therapists, speech-language pathologists, psychologists, physicians, nurses, and others who provide services to infants, children and youth with developmental disabilities; researchers investigating research questions pertaining to the field of childhood disability, university-based students in health-profession programs with courses related to the assessment of children and youth with developmental disabilities.

Clinics in Developmental Medicine No. 194-5

Annette Majnemer
Annette Majnemer

Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is currently Professor and Interim Director, School of Physical & Occupational Therapy, McGill University; Associate Editor of Developmental Medicine & Child Neurology and Co-editor of Physical and Occupational Therapy in Pediatrics.

Her educational and scientific contributions were recently acknowledged by the Muriel Driver Award from the Canadian Association of Occupational Therapists. She is a nominated fellow of the Canadian Academy of Health Sciences.

Section I: Overview

Chapter 1: Selection and use of outcome measures – Annette Majnemer

Chapter 2: Organizational structure of this text – Annette Majnemer

Section II: Body Structures and Functions

– Body Structures

Chapter 3: Neuroimaging testing (s110) – Catherine Limperopoulos

Chapter 4: Genetic testing (not classified) – Myriam Srour, Michael Shevell

– Body Functions

Chapter 5: Global mental functions- Consciousness and sleep (b110, b134) – Reut Gruber, Emily B.J. Coffey, Melanie Stelmazuk

Chapter 6: Global mental functions- Intellectual (b117) – Kim M. Cornish, Michael J. Sornberger, Marina Dupasquier, John Wilding

Chapter 7: Global mental functions- Psychosocial (b122) – Sara King, Christine Chambers

Chapter 8 : Global mental functions- Temperament and personality (b126) – Suzanne Woods Groves, Dennis Harper

Chapter 9: Specific mental functions- Attention, memory, higher-level cognitive (b140, b144, b164) – John Wilding, Kim Cornish

Chapter 10: Specific mental functions- Emotional functions, experience of self/time (b152, b180) – Andrea M. Lee

Chapter 11: Specific mental functions- Perceptual (b156) – Suzanne Woods-Groves, Dennis Harper

Chapter 12: Specific mental functions- Language (b167) – Jane McCormack, Diane Jacobs, Karla Washington

Chapter 13: Sensory functions- General (b210-b270) – Erna Imperatore Blanche, Zoe Mailloux, Gustavo Reinoso

Chapter 14: Sensory functions- Pain (b280-b289) – Tim Oberlander, Chantel C. Burkitt, Frank J. Symons, Celeste Johnston

Chapter 15: Speech functions (b310-b340) – Elspeth McCartney

Chapter 16: Neuromusculoskeletal and movement-related functions – Virginia Wright, Desiree Maltais, Heidi Sanders, Patricia Burtner

Section III: Global Developmental Functioning

Body Functions, Activity and Participation (not classified)

Chapter 17: Screening tools – Frances Glascoe

Chapter 18: Global developmental assessments – Barbara Mazer, Annette Majnemer, Noemi Dahan-Oliel, Irene Sebestyen

Section IV: Activity and Participation

Chapter 19: Overview of activity and participation – Christopher Morris, Annette Majnemer

Chapter 20: Learning and applying knowledge (d110-d179) – Kirsten Ellingsen

Chapter 21: General tasks and demands (d210-d250) – Susana Castro, Shannon Lewis, Rune J. Simeonsson

Chapter 22: Communication (d310-d369) – Sharynne McLeod, Elspeth McCartney, Jane McCormack

Chapter 23: Mobility (d410-d489) – Heidi Sanders Virginia Wright, Desiree Maltais

Chapter 24: Self-care (d510-d571) – Laurie Snider, Annette Majnemer

Chapter 25: Domestic life (d610-d669) – Monica Maia, Kylee Miller, Rune J. Simeonsson

Chapter 26: Interpersonal interactions and relationships (d710-d779) – Sacha Bailey, Lucyna Lach, Katie Byford Richardson, Michael Saini

Chapter 27: Major life areas (d810-d879) – Margareta Adolfsson, Rune J. Simeonsson, Andrea Lee, Kirsten Ellingsen

Chapter 28: Community, social and civic life (d910-d950) – Gary Bedell, Mary Alunkal Khetani, Wendy Coster, Mary Law, Martha Cousins

Section V: Contextual Factors

– Personal (not classified)

Chapter 29: Personal factors – Rune Simeonsson

-Environmental (e110-e595)

Chapter 30: Physical, social and attitudinal environment – Mary Alunkal Khetani, Gary Bedell, Wendy Coster, Martha Cousins, Mary Law

Chapter 31: Health services and systems – Debbie Feldman, Bonnie Swaine

Chapter 32: Family functioning – Aline Bogossian, Lucyna M. Lach, Michael Saini, Ted McNeill

Section VI: Holistic view of health and well-being (not classified)

Chapter 33: Health status – Nora Fayed, Anne Klassen, Vero Schiariti

Chapter 34: Quality of life – Allan Colver

'This impressive book does not only provide a systematic overview of measures for children with developmental disabilities, it also does so within the framework of the International Classification of Functioning, Disability and Health, Children and Youth Version (ICF-CY). The latter is very helpful, as the organization within the framework of the ICF-CY will assist clinicians, researchers, and managers in health care to understand what is measured with a specific tool, and to determine which tool is most appropriate in a specific situation. In other words, the book disentangles which instrument measures which aspect of well-being of the child with a developmental disability.'

Mijna Hadders-Algra, Development Medicine & Child Neurology, 2013

'Will such a major book, 540 pages double columned in A4-format, have any clinical importance? Yes, I think it might become the reference work, a ëmeasure Bibleí, for any habilitation team as every therapist should be able to find what is relevant for her or his part of the service given.'

Bengt Lagerkvist, Acta Paediatrica, 2013

‘I highly recommend this book: Professor Majnemer has brought together a wide range of outcome measurement experts creating a thoughtfully crafted book, essential reading for anyone selecting outcome measures for use with children and youth with developmental disabilities. The book is framed by the components of the ICF-CY and is extremely helpful and illuminating in describing the core concepts of the ICF-CY. If you are only going to buy one book on outcome measures make it this one, and if your budget will not stretch that far encourage your library to buy it.’

Carolyn Dunford, British Journal of Occupational Therapy, 2013

‘The breadth, comprehensiveness, and logical organization are profound and will help pediatric physical therapists better integrate ICF-CY measurement into their practice. The text is essential to international pediatric physical therapy practice and belongs and will become an invaluable addition to one’s resources as a pediatric therapist using ICF-based measurement. Note that this text also is impressive in the comprehensiveness of its coverage of outcome measures as well as the ICF. The authors are international experts in health and measurement and young emerging scientists within the field of child health. Thus, the utility and relevance and the potential effect this text will have across political, social, and geographic boundaries is great. This text will serve as an excellent resource for all pediatric therapists, and it will serve as a welcome addition to individuals both experienced and new to the ICF-CY.’

Carole A. Tucker, Pediatric Physical Therapy, 2014

Measures for Children with Developmental Disabilities (Pack 2) – Selected Chapters: The Body (ebook) - £80
Measures for Children with Developmental Disabilities (Pack 3) – Selected Chapters: Activities and Participation (ebook) - £45
Measures for Children with Developmental Disabilities (Pack 4) – Selected Chapters: Contextual Factors & Holistic View of Health and Well-Being (ebook) - £27
Measures for Children with Developmental Disabilities (Pack 1) – Chapter 1: Selection and Use of Outcome Measures & Chapter 2: The Purpose and Framework for this Text (free ebook) - £0