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Measures for Children with Developmental Disabilities
An ICF-CY Approach
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£150.00
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Measurement of outcomes and their determinants is essential in informing decisions about treatment, and targeting those who may benefit most.
This book uses the International Classification of Functioning, Disability and Health (ICF-CY) to identify the best measures to use to assess a child’s developmental disabilities. It presents and reviews outcome measures across a wide range of attributes that are applicable to children and youth with developmental disabilities.
- The ‘go to’ reference on assessment tools and outcome measures for children with neurodevelopmental disabilities
- Quickly identifies the best measures or outcomes for therapy needs assessment or service provision
- Uses the ICF-CY framework therefore facilitates the retrieval of one or more measures that are directly related to the components of this widely used classification scheme
- Each chapter includes tables that provide a capsule summary of the primary attributes of a subset of key measures for ease of reference
This book is invaluable for clinicians and educators seeking an appropriate, psychometrically sound measure in a particular domain of functioning that can be used with an individual child or target population. It’s also a useful resource for researchers in the field of childhood disability.
Readership
Occupational therapists, physical therapists, speech-language pathologists, psychologists, physicians, nurses, and others who provide services to infants, children and youth with developmental disabilities; researchers investigating research questions pertaining to the field of childhood disability, university-based students in health-profession programs with courses related to the assessment of children and youth with developmental disabilities.
Clinics in Developmental Medicine No. 194-5
Annette Majnemer
Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is currently Professor and Interim Director, School of Physical & Occupational Therapy, McGill University; Associate Editor of Developmental Medicine & Child Neurology and Co-editor of Physical and Occupational Therapy in Pediatrics.
Her educational and scientific contributions were recently acknowledged by the Muriel Driver Award from the Canadian Association of Occupational Therapists. She is a nominated fellow of the Canadian Academy of Health Sciences.
Section I: Overview
Chapter 1: Selection and use of outcome measures – Annette Majnemer
Chapter 2: Organizational structure of this text – Annette Majnemer
Section II: Body Structures and Functions
– Body Structures
Chapter 3: Neuroimaging testing (s110) – Catherine Limperopoulos
Chapter 4: Genetic testing (not classified) – Myriam Srour, Michael Shevell
– Body Functions
Chapter 5: Global mental functions- Consciousness and sleep (b110, b134) – Reut Gruber, Emily B.J. Coffey, Melanie Stelmazuk
Chapter 6: Global mental functions- Intellectual (b117) – Kim M. Cornish, Michael J. Sornberger, Marina Dupasquier, John Wilding
Chapter 7: Global mental functions- Psychosocial (b122) – Sara King, Christine Chambers
Chapter 8 : Global mental functions- Temperament and personality (b126) – Suzanne Woods Groves, Dennis Harper
Chapter 9: Specific mental functions- Attention, memory, higher-level cognitive (b140, b144, b164) – John Wilding, Kim Cornish
Chapter 10: Specific mental functions- Emotional functions, experience of self/time (b152, b180) – Andrea M. Lee
Chapter 11: Specific mental functions- Perceptual (b156) – Suzanne Woods-Groves, Dennis Harper
Chapter 12: Specific mental functions- Language (b167) – Jane McCormack, Diane Jacobs, Karla Washington
Chapter 13: Sensory functions- General (b210-b270) – Erna Imperatore Blanche, Zoe Mailloux, Gustavo Reinoso
Chapter 14: Sensory functions- Pain (b280-b289) – Tim Oberlander, Chantel C. Burkitt, Frank J. Symons, Celeste Johnston
Chapter 15: Speech functions (b310-b340) – Elspeth McCartney
Chapter 16: Neuromusculoskeletal and movement-related functions – Virginia Wright, Desiree Maltais, Heidi Sanders, Patricia Burtner
Section III: Global Developmental Functioning
Body Functions, Activity and Participation (not classified)
Chapter 17: Screening tools – Frances Glascoe
Chapter 18: Global developmental assessments – Barbara Mazer, Annette Majnemer, Noemi Dahan-Oliel, Irene Sebestyen
Section IV: Activity and Participation
Chapter 19: Overview of activity and participation – Christopher Morris, Annette Majnemer
Chapter 20: Learning and applying knowledge (d110-d179) – Kirsten Ellingsen
Chapter 21: General tasks and demands (d210-d250) – Susana Castro, Shannon Lewis, Rune J. Simeonsson
Chapter 22: Communication (d310-d369) – Sharynne McLeod, Elspeth McCartney, Jane McCormack
Chapter 23: Mobility (d410-d489) – Heidi Sanders Virginia Wright, Desiree Maltais
Chapter 24: Self-care (d510-d571) – Laurie Snider, Annette Majnemer
Chapter 25: Domestic life (d610-d669) – Monica Maia, Kylee Miller, Rune J. Simeonsson
Chapter 26: Interpersonal interactions and relationships (d710-d779) – Sacha Bailey, Lucyna Lach, Katie Byford Richardson, Michael Saini
Chapter 27: Major life areas (d810-d879) – Margareta Adolfsson, Rune J. Simeonsson, Andrea Lee, Kirsten Ellingsen
Chapter 28: Community, social and civic life (d910-d950) – Gary Bedell, Mary Alunkal Khetani, Wendy Coster, Mary Law, Martha Cousins
Section V: Contextual Factors
– Personal (not classified)
Chapter 29: Personal factors – Rune Simeonsson
-Environmental (e110-e595)
Chapter 30: Physical, social and attitudinal environment – Mary Alunkal Khetani, Gary Bedell, Wendy Coster, Martha Cousins, Mary Law
Chapter 31: Health services and systems – Debbie Feldman, Bonnie Swaine
Chapter 32: Family functioning – Aline Bogossian, Lucyna M. Lach, Michael Saini, Ted McNeill
Section VI: Holistic view of health and well-being (not classified)
Chapter 33: Health status – Nora Fayed, Anne Klassen, Vero Schiariti
Chapter 34: Quality of life – Allan Colver
'This impressive book does not only provide a systematic overview of measures for children with developmental disabilities, it also does so within the framework of the International Classification of Functioning, Disability and Health, Children and Youth Version (ICF-CY). The latter is very helpful, as the organization within the framework of the ICF-CY will assist clinicians, researchers, and managers in health care to understand what is measured with a specific tool, and to determine which tool is most appropriate in a specific situation. In other words, the book disentangles which instrument measures which aspect of well-being of the child with a developmental disability.'
Mijna Hadders-Algra, Development Medicine & Child Neurology, 2013
'Will such a major book, 540 pages double columned in A4-format, have any clinical importance? Yes, I think it might become the reference work, a ëmeasure Bibleí, for any habilitation team as every therapist should be able to find what is relevant for her or his part of the service given.'
Bengt Lagerkvist, Acta Paediatrica, 2013
‘I highly recommend this book: Professor Majnemer has brought together a wide range of outcome measurement experts creating a thoughtfully crafted book, essential reading for anyone selecting outcome measures for use with children and youth with developmental disabilities. The book is framed by the components of the ICF-CY and is extremely helpful and illuminating in describing the core concepts of the ICF-CY. If you are only going to buy one book on outcome measures make it this one, and if your budget will not stretch that far encourage your library to buy it.’
Carolyn Dunford, British Journal of Occupational Therapy, 2013
‘The breadth, comprehensiveness, and logical organization are profound and will help pediatric physical therapists better integrate ICF-CY measurement into their practice. The text is essential to international pediatric physical therapy practice and belongs and will become an invaluable addition to one’s resources as a pediatric therapist using ICF-based measurement. Note that this text also is impressive in the comprehensiveness of its coverage of outcome measures as well as the ICF. The authors are international experts in health and measurement and young emerging scientists within the field of child health. Thus, the utility and relevance and the potential effect this text will have across political, social, and geographic boundaries is great. This text will serve as an excellent resource for all pediatric therapists, and it will serve as a welcome addition to individuals both experienced and new to the ICF-CY.’
Carole A. Tucker, Pediatric Physical Therapy, 2014
