Subject: Neurodevelopmental Disorders and Neurodisability

Series: Mac Keith Press Practical Guides

Publication date: 31/01/2020

ISBN: 9781911612254

Pages: 208

Nutrition and Neurodisability

Peter Sullivan, Guro Andersen, Morag Andrew (Editors)

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Feeding difficulties are common in children with neurodisability and disorders of the central nervous system can affect the movements required for safe and efficient eating and drinking. This practical guide provides strategies for managing the range of nutritional problems faced by children with neurodevelopmental disability. The easily accessible information on aetiology, assessment and management is informed by a succinct review of current evidence and guidelines to inform best practice.

  • Provides practical clinical strategies accessible at point of care
  • Expert topic reviews provide evidence-based approaches
  • Clinical vignettes illustrate key learning points
  • Concise summaries of key clinical guidelines
  • Identification of the Red Flags suggesting nutritional compromise
  • Emphasis on use of body composition in nutritional assessment

From the Foreword

‘The application of the knowledge provided in this new book should provide a basis for enabling persons with disabilities to take part in and enjoy any meal both in a private and a public setting.’

-Torstein Vik, Professor of Paediatrics, Norwegian University of Science and Technology, Trondheim, Norway


This book will be particularly useful for multidisciplinary professionals managing feeding, growth and nutrition in children with neurodisabilities, including paediatricians, speech and language therapists, occupational therapists and dietitians. The handbook will also be of interest to general practitioners, dentists, medical students and allied health professional students.

A Practical Guide from Mac Keith Press

Peter Sullivan
Peter B Sullivan

Peter Sullivan trained in Universities in Manchester, Cambridge and London and has worked in India, The Gambia and Hong Kong. He was the first David Baum Fellow of the Royal College of Paediatrics and Child Health and also past-President of the Commonwealth Association of Paediatric Gastroenterology and Nutrition. He is currently Associate Dean of the Medical Sciences Division of Oxford University with responsibility for postgraduate clinical medical training. His research interests focus on the gastrointestinal and feeding problems of children with neurodisability in which subject he is actively engaged in research and on which he has produced numerous scientific papers and textbooks.

Morag J. Andrew

Morag Andrew trained in Paediatric Neurodisability in London (Great Ormond Street Hospital for Children) and Oxford, where she developed her interests in neurological feeding disorders and nutrition. She was awarded a DPhil (University of Oxford) for her work on nutritional intervention following perinatal brain injury and has published several original research papers from this work. She was one of the first British Academy of Childhood Disability-Castang fellows between 2017-2019. Her research interests include nutrition in neurodisability as well as neurodisability interventions more broadly.

Guro Lillemoen Andersen
Guro Andersen

Guro Lillemoen Andersen established the Cerebral Palsy Register of Norway, which she currently leads, and the Nutritional team at the Habilitation Center at Vestfold Hospital Trust, where she is a senior consultant. Guro was also a Task Coordinator for Task 5.3 Growth and Nutrition Variations in general outcomes of health care for children with cerebral palsy across Europe: growth and nutrition; a study by the Surveillance of Cerebral Palsy in Europe.

Foreword, Torstein Vik
1. The Normal Development of Oral Motor Function: Anatomy and Physiology
Morag J Andrew
2. “When Things Go Wrong”: Causes and Assessment of Oral Sensorimotor Dysfunction
Diane Sellers
3. Oral Health and Sialorrhea
Laurie Glader, Amy Hughes and Isabelle Chase
4. Gastrointestinal Problems in Children with Neurodisability: Causes, Symptoms and Management
Ilse Broekaert
5. Consequences of Nutritional Impairment
Jessie M Hulst
6. Assessment of Nutritional State: Growth, Anthropometry and Body Composition
Jane Hardy and Hayley Kuter
7. Assessment of Nutritional State: Dietetic; Energy and Macronutrients
Kristie L Bell and Jacqueline L Walker
8. Assessment of Nutritional State: Micronutrient deficiencies and Bone Health
Heidi H Kecskemethy and Steven J Bachrach
9. Feeding and Nutritional Management Strategies
Kristie L Bell, Katherine Benfer and Kelly Weir
10. Enteral Tube feeding: Practical and Ethical Considerations
Peter B Sullivan
11. Conclusion
Guro Lillemoen Andersen

'What makes this book unique is this deeper dive into the nutritional issues that come up in this unique patient population. The objectives are extremely worthy in this unique patient population, which is likely overlooked. The book is necessary to prompt clinicians to look beyond deficits in their patients to what other important issues they need to address to help prevent a decline or a later issue. The book does a great job of incorporating case studies into most of the chapters to help bring the information together for clinicians. This is a high-quality book that is useful to the intended audience, and it is a useful/simple read for clinicians to help them treat this unique patient population.'

Deena Hassaballa, Shirley Ryan AbilityLab, 2020

'The authors are some of the world’s leading experts in the field from Europe, Australia, and North America. They have contributed their extensive knowledge and expertise, and have reviewed all the recent studies and guidelines in order to address the most important aspects of this challenging topic. These include oral sensorimotor dysfunction, gastrointestinal problems, nutritional status definition, and nutritional impairment, as well as feeding and nutritional management strategies. The perspective of the handbook is practical, useful for both clinicians new in the field and those more experienced. Many of the chapters have included the description of clinical cases to enhance the key messages.'

Valeria Dipasquale and Frederic Gottrand, Developmental Medicine & Child Neurology, 2020

Nutrition and Neurodisability – Chapter 1: The Normal Development of Oral Motor Function (free ebook) - £0
Nutrition and Neurodisability – Chapter 2: “When Things Go Wrong”: Causes and Assessment of Oral Sensorimotor Dysfunction - £7.65
Nutrition and Neurodisability – Chapter 3: Oral Health and Sialorrhea - £7.65
Nutrition and Neurodisability – Chapter 4: Gastrointestinal Problems in Children with Neurodisability: Causes, Symptoms and Management - £7.65
Nutrition and Neurodisability – Chapter 5: Consequences of Nutritional Impairment - £7.65
Nutrition and Neurodisability – Chapter 6: Assessment of Nutritional State: Growth, Anthropometry and Body Composition - £7.65
Nutrition and Neurodisability – Chapter 7: Assessment of Nutritional State: Dietetic; Energy and Macronutrients - £7.65
Nutrition and Neurodisability – Chapter 8: Assessment of Nutritional State: Micronutrient deficiencies and Bone Health - £7.65
Nutrition and Neurodisability – Chapter 9: Feeding and Nutritional Management Strategies - £7.65
Nutrition and Neurodisability – Chapter 10: Enteral Tube feeding: Practical and Ethical Considerations - £7.65