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An Interview with Holly Tuke and Naomi Dale

An Interview with Holly Tuke and Naomi Dale

In this special Q&A between Mac Keith Press authors Holly Tuke and Naomi Dale, the two discuss Holly’s involvement in the December 2021 publication Children with Vision Impairment: Assessment, Development, and Management by Naomi Dale, Alison Salt, Jenefer Sargent, and Rebecca Greenaway.

Holly kindly contributed a chapter to the book on the lived experience of young people with vision impairment which made for both an engaging and highly insightful written piece.

Children with Vision Impairment: Assessment, Development, and Management is due for publication on the 15th December 2021 and is available for pre-order in both paperback and digital.

Holly Tuke (left) and Naomi Dale (right)

Naomi: Hi there, Holly. It’s great to speak to you again. I just want to say thanks for contributing to the book. It’s such a wonderful addition and very insightful.

Holly: Thank you for letting me contribute. It’s an incredible feeling to be able to say that I’m an officially published author! …well, almost!

Naomi: Yes, almost! We should be publishing this week. I know my fellow editors are just as excited as you are. It’s been several years in the making, but the final book proofs look fantastic. We can’t wait to share it with everyone.

What I’d like to know – and I think the readers would like to know too – is a bit more about you and how you got involved in the book?

Holly: Well, my name is Holly Tuke, I’m a disability blogger, freelance writer and Social Media Officer. I am registered blind due to a condition called Retinopathy of Prematurity, as I was born at 24 weeks. I’m also a massive music fan and a bit of a bookworm.

Naomi: A bookworm? Not too surprising you’ve ended up becoming an author then!

Holly: Yes, definitely! I got involved in the book as I was contacted by one of the authors who had come across my blog, and thought I’d be a good fit for the chapter on young person’s experience of vision impairment. We exchanged a number of emails and discussed the book and the specific chapter in more detail, I then made the decision to write the chapter!


Holly Tuke is an award-winning disability blogger and writer. They are co-host of the Happy Hour on RNIB Connect Radio and a Social Media Officer.

In this photo, Holly Tuke is standing in front of Edinburgh Castle which rises up behind them. Holly is wearing a back blouse with white spots and a necklace. To their right, tourists enter the Edinburgh Castle via the entrance/gatehouse. Above the gatehouse is the royal crest of Scotland, a red lion on a yellow field.


Naomi: And we are very grateful you did. Not only including lived experience but listening to the voices and experiences of people (and children) with visual impairment was immensely important to us when writing the book. I’m glad that you were kind enough to be part of that process.

Obviously, we want people to read the book, but if you could sum up some of the core messages in your chapter, what would they be?

Holly: Listening and learning from people’s lived experiences is vital, so I’ve tried to encompass some important messages about that in my chapter.

The first being how important it is to listen to blind and vision impaired people. Take note of what we’re saying.

Naomi: Yes, absolutely.

Holly: Another core message of my chapter is that every blind or vision impaired person is different. What works for one person doesn’t mean that it’ll work for another. Vision impairment is a spectrum, it does not fit into a box.

I’d say that one of the most important messages of my chapter is reiterating the fact that blind and visually impaired people can lead normal, independent lives. We may do things differently, but we can still shape our life the way we want it to be.

Naomi: Thank you. Yes, I couldn’t agree more. It’s so important to keep highlighting that everyone with visual impairment is different and the experiences of vision impairment and just disability in general, are unique to the person. I imagine your own life experiences helped shaped your chapter too?

Holly: My chapter is a true reflection of my life. It’s real, honest, and straight from the heart.

“Blind and visually impaired people can lead normal, independent lives. We may do things differently, but we can still shape our life the way we want it to be.”

Holly Tuke

I’ve discussed some of the most pivotal moments that have helped me get to where I am today including my experiences of mainstream education, university, and employment, as well as my hobbies and interests.

When writing the chapter, I thought about what I wish I’d known when growing up with a vision impairment, what my family wish they’d known, as well as my interactions with professionals in the field.

The whole chapter is based on my lived experiences of being a blind person. In fact, it shaped every aspect of the chapter.

Naomi: Yes, you can really see that in the writing, and I expect readers will find it quite impactful to read. As a professional, I learned so much from your chapter which will change my own practice. I want to say again how great a chapter it is – so honest. Thanks again, Holly.

Holly: Thank you!

Naomi: Before we close off, I wonder if I might also ask you what you’re doing aside from the book? I understand you do work for a charity and run a successful blog?

Holly: That’s right. I work as a Social Media Officer for a charity that’s extremely close to my heart. Working in communications within the charity sector is something that I’ve had my sights set on for years, but I never thought it would actually happen.

Alongside my job, I spend a lot of time tapping away at my keyboard putting together a blog post for my blog ‘Life of a Blind Girl’ or an article for another publication or website. I also use my social media platforms to share my experiences of living with a vision impairment, raise awareness and educate society.

I also present a show on RNIB Connect Radio on mental health and wellbeing.

So, as you can tell…I’m a busy woman!

Naomi: Gosh, you certainly are! I don’t know where you found the time to contribute! You are happy you did though?

Holly: Of course. Having the chance to contribute to the book has been fantastic, it’s something that I’ll never forget. As a bit of a bookworm, it has been really interesting to see the other side of the bookish world, from the creation and publishing side of things.

Being an author of a chapter in a book is definitely a ‘pinch-myself’ moment!

Naomi: I’m very glad to hear that!


Holly Tuke and Naomi Dale, December 2021

Holly Tuke is an award-winning disability blogger and writer. They are co-host of the Happy Hour on RNIB Connect Radio and a Social Media Officer.

holly@lifeofablindgirl.com

Life of a Blind Girl

Naomi Dale is a Consultant Clinical psychologist and Paediatric Neuropsychologist (Neurodisability) at Great Ormond Street Hospital for Children, London UK and Professor in Paediatric Neurodisability (with specialist interest in Vision Neurodisability) at UCL Great Ormond Street Institute of Child Health London.

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An Interview with Mijna Hadders-Algra: 9 months post publication of Early Detection and Early Intervention in Developmental Motor Disorders

An Interview with Mijna Hadders-Algra: 9 months post publication of Early Detection and Early Intervention in Developmental Motor Disorders

Nine months on from publication, Early Detection and Early Intervention in Developmental Motor Disorders editor Mijna Hadders-Algra reflects on the key themes and insight from their book.

Early Detection and Early Intervention in Developmental Motor Disorders published in March 2021.

Mijna Hadders-Algra pictured above holding her book Early Detection and Early Intervention in Developmental Motor Disorders

What are the core themes of the book?

The core themes of the book are – as the book’s title indicates – early detection of and early intervention in developmental motor disorders. The book focuses on the first 1,000 days of life. It covers the prenatal period and the first two postnatal years when the brain undergoes rapid and dynamic developmental changes. Recently, there has been a stronger emphasis on identifying infants that will go on to have developmental disorders as early as possible, so that the proper guidance of infant and family can be started. In clinical practice, this can be difficult. The book aims to teach practitioners about the tools assisting early detection, the strategies associated with better outcomes, and the potential opportunities and challenges imposed by the developing brain.

How is the book structured?

The book has seven parts. Part I sets the scene. Part II addresses the young brain’s neurodevelopmental mechanisms, as the brain’s dynamic developmental changes have major consequences for early detection and early intervention. The developmental changes impose challenges on early detection and its neuroplasticity offers excellent opportunities for early intervention. In order to understand the principles of early detection and early intervention, parts III and IV first discuss typical and atypical motor development, respectively. Also sensory, language, cognitive, and socio-emotional development are addressed, as development in the various domains is highly interrelated. Part V deals with early detection; it systematically discusses the most common and valid methods. Part VI describes early intervention; it pays specific attention to the family and to environmental adaptations.

Why did you write the book / why is it needed now?

During my teaching on early detection and early intervention I realized that a book that overviewed early detection and early intervention was lacking. Presumably this lack was due to the limited knowledge in the field in last century. But recently knowledge increased rapidly. It was clear: it was time for this book, that covers the whole range from developmental neuroscience to the participation of child and family in daily life.

“But recently knowledge increased rapidly. It was clear: it was time for this book”

Mijna Hadders-Algra

Who will benefit most from reading the book?

All health professionals involved in the care of infants may profit. This pertains to professionals working in the care of high risk infants, both in the hospital and in outpatient clinics, and to those working in primary care settings. This means that the book is intended for (neuro)paediatricians, child neurologists, neonatologists, paediatric rehabilitation doctors, paediatric physiotherapists, occupational therapists, speech-language therapists, nurses working in the care of infants, educationalists, and researchers.

What was the main highlight or experience you had whilst writing this book?

During the writing of the book, I once again realized how much I had learned from the families that allowed me to do embedded research. The families had an infant with a major lesion of the brain that resulted in the diagnosis of CP. They allowed me to be present in their home during major parts of many days during their child’s development. Observation of the daily care giving practices and the conversations with the family members about the many aspects associated with raising a child with a developmental motor disorder, including grief, joy and the many hassles and time consuming daily practicalities, formed the basis of this book.


Mijna Hadders-Algra December 2021

Mijna Hadders-Algra is professor of Developmental Neurology.  Her research focuses on 1) early detection of developmental disabilities, 2) early intervention, 3) significance of minor neurological dysfunction (MND) in children with DCD, learning- and behavioural disorders, 4) pathophysiology of motor impairment in children with cerebral palsy or DCD.