Ethics in Child Health – Chapter 27: Discussing sudden unexpected death in newly diagnosed epilepsy (ebook)


Chapter 27 of the book – Discussing sudden unexpected death in newly diagnosed epilepsy

Reese and Pearl raise and explore the complexity of discussing sudden unexpected death in epilepsy (SUDEP). What makes this issue so unusual are features such as the variability of the risks of the condition from one form of epilepsy to another, the variable degrees of uncertainty in even beginning to try to predict it, and the potential to create considerable distress and perhaps suffering in people faced with this rare but obviously catastrophic event. The authors build their approach to these challenges using a combination of descriptive and research-based literature and a thoughtful analysis of the ethical as well as clinical considerations that can be brought to bear in the specific clinical situation.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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