Ethics in Child Health – Chapter 29: Growth and pubertal manipulation in children with neurodisabilities (ebook)


Chapter 29 of the book – Growth and pubertal manipulation in children with neurodisabilities: what are the ethical implications?

One of the dilemmas associated with 21st-century Western medicine is the possibility to engage in interventions that in earlier times might not even have been imagined, and were in any case usually technically impossible. Samaan considers this dilemma in the context of the possibility to manipulate physical and pubertal growth in a young person with significant permanent functional limitations. Whose needs and wishes are being served, and to whom are we as professionals accountable? Drawing on the highly publicized story of Ashley, a child in Seattle, USA, he explores the considerations that can and should be brought to bear on whether this ‘treatment’ is indicated, appropriate and ethical.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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