Ethics in Child Health – Chapter 13: A miracle cure for neurological disability (ebook)


Chapter 13 of the book – A miracle cure for neurological disability: balancing hype and hope for parents and patients in the absence of evidence-based recommendations

Parents of children and young people with complex and incurable neurodisabilities sometimes request support and endorsement from their service providers for interventions that are outside the scope of conventional practice. In some circumstances these requests can generate considerable discomfort for the practitioners. Clinicians can be caught between wanting to respect parent/patient autonomy (in the service of family-centeredness), and being concerned about issues of safety, legality or probity of these alternative approaches. The more complex the child’s issues and the less we have to offer from conventional management, the more ethically challenging the parents’ demands might become. Mann, Saneto and Gospe explore a case scenario where medical marijuana is the perceived complementary and alternative medicine for a child with uncontrolled seizures.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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