Ethics in Child Health – Chapter 17: Service provision for hard-to-reach families (ebook)


Chapter 17 of the book – Service provision for hard-to-reach families: what are our responsibilities?

Ethical challenges can emerge when clinical policies within an agency with decision-making responsibility – such as a community-based facility or government-run program – appear to conflict with the best intentions of the front-line service providers. Phoenix addresses these issues in a compelling story of the conflict created for her and her colleagues when a standard policy about families’ missed appointments came up against the clinicians’ awareness of and sensitivity to the stresses on a family that accounted for this apparent delinquency. The clinicians were caught in a dilemma that led to a no-win situation – at least for the immediate issue – and caused discomfort for most of the players.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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