Ethics in Child Health – Chapter 19: The dilemmas for siblings of children with disabilities (ebook)


Chapter 19 of the book – The dilemmas for siblings of children with disabilities: personal reflections on ethical challenges

In this chapter, Blasco explores the issues of an able-bodied, but possibly troubled, sibling of a child with significant impairments who is the focus of the clinical attention. In recognizing the sibling’s issues he explores the conflicts inherent in deciding the clinicians’ roles and responsibilities to the patient and their family; the importance to the child of a family’s well-being; the limits of our time and resources with which to address the sibling issues; and the potential for intervention to appear to overstep the narrow bounds of our clinical mandate. In the next chapter, Reddihough and Davis show how the same challenges arise when working with the parents of children with impairments.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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