Ethics in Child Health – Chapter 30: Independence in adulthood (ebook)


Chapter 30 of the book – Independence in adulthood: ethical challenges in providing transitional care for young people with neurodevelopmental impairments

Whereas typically developing young people have opportunities to take risks, make their own decisions, and learn from life, many young people with impairments have limited possiblities to do this, and can be thought of as being ‘deprived’. Gorter and Gibson apply ethical frameworks and processes to explore the many, often complex, challenges associated with our work as service providers striving to support the individuation of young people toward autonomy and seamless healthcare transition. They reflect on the possibility that some of our well- intentioned goals and activities may in fact be counter-productive. They also identify the very real challenges posed by environmental limitations and barriers that can interfere with even the best-laid plans for transition.

About the complete book

Have you ever:

  • Wondered how to deal with a family that repeatedly fails to keep clinic appointments?
  • Disagreed with colleagues over a proposed course of treatment for a child?
  • Considered ways to ‘bump’ a child on a waiting to speed up their assessment?

These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful ‘Themes for Discussion’ are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.


Readership: clinicians and paediatricians in neurodisability, service providers in neurodisability, community-based health professionals,  and health policy makers.

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