A parent’s perspective on everyday ethics
Jennifer Johannesen
01 Prologue
02 Family background
03 Policy nudges
04 A parent’s perspective
05 Broken communication (video)
06 A parent’s perspective
07 Autonomy without guidance
08 A parent’s perspective
09 A parent’s perspective on everyday ethics
10 Epilogue (video)
00 References
00 User Guide
00 Learning Account
A parent’s perspective on everyday ethics
No Ordinary Boy Jennifer Johannesen (9m21s) (external link)
Owen (No Ordinary Boy) was born with profound impairments and died at the age of twelve.
Jennifer Johannesen is his parent. As someone with training in ethics, she offers valuable insights as well as sharing her personal experiences. Johannesen provides three vignettes she and her family experienced in their journey with Owen into the world of the clinician.
Each story provides invaluable perspectives that reflect the good intentions of the healthcare providers and systems with which their family worked.
At the same time, as she describes the actions of medical professionals, it becomes apparent that there were unrecognized implications and consequences to these encounters.
